Jake's mom, Kim recently posted the following update.
Cancer World Stinks!
Posted Oct 8, 2009 11:03am
That is a given on any day but I'm finding out today that yesterday was particularly bad. Nothing changed for us at clinic but we saw 2 of our long time patient friends there yesterday and found out this morning that they both got not great news after their appointments. Please say a few prayers for Charlotte and Kira who don't deserve any of this. Both kids looked great and it is hard to hear the news.
Yesterday at clinic was like old home week-yes crazy that is how we see clinic sometime. We saw so many of our old friends on and off treatment that have been living this as long or longer then us. Jake joined a pizza party with his friends Chris and Hayley and was happy to see so many others. I love to see the kids making the best of this situation. It was great to see Maddie and her mom Paula who is one of our inspirations since she just passed her one year off treatment visit from the relapse protocol that we are on right now. Yay maddie! She looks beautiful and Jake even blushed a little when he saw her. :)She gives us the hope we need for the future.
Jake has been feeling good still. His night terrors stopped shortly after I posted last, which was a relief. He is back on steroids this past week and has been eating like a champ. He has gained a few pounds which will be a good buffer going into this next more difficult cycle where he likely will lose some weight. His blood counts were great and was able to get his last dose of chemo for this cycle. Next week he will move into the next phase which runs for 24 weeks(until we hit our 1 year mark) Next Wednesday he will have to begin going inpatient again pretty frequently. He will start off with the very tough Ara-C which is the one that drops his counts to nothing for an extended time. So I will be gearing up to bunk at Chez Children's for planned and unplanned stays. We will also have to start the blood thinning shots daily next week again and and GCSF shots too so we will be back to 2 shots a day many days. He is not happy about this in the least. Neither are we! He still has bruises all over his legs from the last round. The alternative is that the clot in his heart gets bigger and that is just not an option in our book!
For now we will enjoy our last weekend of unbridled fun, sports, etc before the shoe drops. I am just so thankful for the summer we had and that he has been able to be in school for the first 6 weeks to get settled. I never thought that would even happen. We got some pictures in the mail yesterday that were taken at Hole in the wall Camp(courtesy of Flashes of Hope) of our beautiful bald boy. I will post one in the photo gallery soon! It show how far he has come even from July. Thanks for checking in!
Prayers for all our friends, please...
Love, Kim
You can keep up with Jake's updates at www.carepages.com/carepages/JakeMaguire
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