Friday, October 9, 2009

An update from Kira's carepage



Below is the reason PHAT Tuesday rides the Pan-Mass Challenge. Kira Corning, a member of our PHAT Tuesday PHamily and our 2006/2007 Pedal Partner.


Not as planned


Posted 10/08/09


We just got punched in the stomach again. Although the preliminary read of Kira’s MRI said her spine was clear, the senior radiologist noticed something showing up, a very small enhancement, in her lower spine. Unfortunately this was noticed after we were told stable last week and long after Kira was out of the MRI machine. Now this could be a blood vessel as it isn’t presenting as a typical tumor. Kira doesn’t do anything “typically” so no matter how much they are trying to tell us they aren’t alarmed, and that this is just “unsettling” and not alarming, we are sick to our stomachs. Bottom line, we need to get more pictures and some cross sections to determine what this enhancement is in her spine. The plan is to get another MRI of brain and spine, with thinner slices and do it hopefully in 3 weeks as her end of treatment MRI. And hopefully, fingers crossed, this will actually be just an end of treatment MRI and not the start of something new.

KIRA KNOWS NOTHING about this. She doesn’t need to know. They’ll redo the MRI and then we’ll either be done, or figure out the next line of treatment. Until we figure out what we have, we are just going along as “normal”. Yeah, easier said than done. Our oncologist did go over some advances they have made thanks to people raising money for them to do research. So if you donated to Kira’s Kruisers recently, you’ve really helped us out! Our team has contributed over $83,000 to research. If this is not a blood vessel in Kira’s spine and in fact disease, we have a lot of new medicines that we can try thanks to research being done.

Some other friends at clinic got some bad news yesterday too. I just cannot ever get used to hearing our friends continually relapse. Hey, some also got good news too and I’m so very happy for that. Please just keep all our clinic friends in your thoughts.

ENOUGH DOOM AND GLOOM! Kira’s 8th birthday was this past weekend and we had a blast. We went to the RainForest CafĂ© for lunch with the Eisnors and then to Cloudy with a Chance of Meatballs in 3D! The slideshow I’ve been using isn’t allowing me the edits I want, so a few comments on the slideshow. There is one picture when Mary sees Kira and basically goes air born into Kira’s arms! Then there’s a few where the girls are looking around SCREAMING during the “rain storm” in the restaurant. It was hysterical!

Copy and paste the link below into your browser to see the slideshow:

http://www.dotphoto.com/go.asp?l=reneecorning&SID=259906&Show=Y&p=



To read more about Kira, you can visit her carepage at www.carepages.com/carepages/KirasCorner

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